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Katie Lynn Baker ~1986 ~ 1996
In 1996 weighing twenty-two pounds, ten-year-old Katie Lynn Baker died of starvation. To add to this tragedy, social workers investigating the case knew that Katie Lynn was dying, but failed to take any action to save her. The coroner ruled her death a homicide. Katie had Rhett Syndrome. The criminal justice branch of the BC Ministry of the Attorney-General released its report in December 1999, stating that it will not be laying charges because "there is no likelihood of conviction."
Chelsea Craig ~ 1987 ~ March 19, 2001
"For us, she was just a delightful child who wanted to learn and develop and grow and was open to all kinds of new things . . .Our eyes light up when we think of her." Darlene Berringer, director of Giant Steps school in Westmount.
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True Story Of The Murder Of A Child By Dick Sobsey, 14 May 2005 | |
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Chelsea Craig | |
| We don't justify killing but we know the desperation | |
| Montreal woman charged in handicapped daughter's death fit to stand trial | |
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Julia
Roberts, narrates and is featured in the program,
SILENT
ANGELS http://www.rettsyndrome.org/content.asp?contentid=627
Julia, made the decision to help raise public awareness of Rett Syndrome
when she met a little girl with the disease named Abigail Brodsky. All it
took was one smile, and Julia became involved. Ms. Roberts is featured in
the film alongside Abigail. | |
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RETT SYNDROME ~ MORE HELP SITES . . .
Katie Lynn Baker, commentary by Cheryl Eckstein |
News of a child who is murdered is disturbing and serious. It is very difficult for us to understand how a parent can kill their own child. The death of Katie Lynn Baker is no exception. Katie Lynn was only 10 years old when her mother claimed she wanted to die. Katie had Rhett Syndrome. (RS) Briefly, RS affects only females Due to the rarity of RS, and lack of records, very little is known about long term prognosis and life expectancy. While there are a few women in their 40's and 50's who have RS, there have been too few women studied to make reliable estimates beyond age 40. The International Rhett Syndrome Association (IRSA) says that 93% of those diagnosed and have reported to IRSA are still living. IRSA says “Although she may be at higher risk for life–threatening events such as pneumonia, choking and seizures, it is very likely that your daughter will live a long life.” Katie’s weight at death was 22 pounds – which is what a normal 2- 3 year old would weigh. The coroner ruled her death a homicide. The criminal justice branch of the British Columbia Ministry of the Attorney-General released its report in December 1999, stating that it will not be laying charges because "there is no likelihood of conviction." The ruling on Katie Lynn’s death may be the most foreboding of all decisions relating to so-called mercy killing in Canada.
Let us for a moment look outside of Canada for similar tragic deaths and rulings. In 2004 Pennsylvania Governor Rendell Signed Execution Warrant for Michelle Sue Tharp. Michelle is on death row awaiting her lethal injection for starving her seven year old daughter to death. A German couple starved little 7-year-old Jessica to death; both received a life sentence. Germany abolished the death penalty in 1949. These are just 2 examples from many such cases I researched where parent(s) were found guilty of first degree murder for starving a child to death. None of victims were reported as having a disability. The one case I found where a 35- year-old woman with a disability was starved to death happened in 2004. Karen Dreager was in the care of her sister, Debra McMahon. Debra was sentenced to 15 years after pleading guilty to second degree murder. Karen had C.P. Her lawyer argued she was doing the best she could and that she did offer food but she didn't eat because of a medical condition she didn't know about." Furthermore she argued her client was only trying to fulfill their mother's dying wish, that Karen not go into a nursing home.
The ruling in Katie Lynn Baker case is ominous and may rightly be considered in decriminalizing homicide of children with disabilities or creating a new so called compassionate homicide law .
On the 14th day of being dehydrated and starved Terri Schiavo died, March 31, 2005. The whole world knew about Terri, and people were praying, hoping for a miracle from the courts. That same year Dylan Walborn, Broomfield, Colorado, “was a victim of America’s “mercy-killing,” euthanasia movement. Judged better off dead by Denver’s Children’s Hospital, Porter Hospice, a Denver social worker, Dylan's public school teachers, and the Denver Post, four-year-old Dylan was starved to death over a period of twenty-four days.”
Somehow, before he died, we didn’t hear about this child. Like Katie Lynn Baker, Chelsea Craig, and Terri Schiavo, Dylan was not dying, he was not terminally ill. Terri Schiavo, Dylan Walborn were two innocent defenseless human beings who were legally murdered, and it’s called compassion! Mercy!
“In a sidebar to the main article, Dr. Stefan Mokrohisky, chair of the ethics committee at Denver's Children's Hospital says, "I guess you could say that even the medical intervention to provide the nutrition is no longer a benefit when compared with the burden of current existence."’
Our Government does not work in a vacuum. When studying euthanasia, the Canadian government and Senate considered local consultation and investigations to see whether laws which have passed in other parts of the world should be adopted in Canada. The courts study rulings from other courts outside of Canada and are referred to when so-called mercy killing cases come before them, such as with Terri Schiavo. There is little doubt in my mind that the decisions in Katie Lynn Baker and Dylan Walborn will be cited in future so called mercy killings.
We are very grateful for advocates like Catherine Frazee, Hugh Scher, Dick Sosby, NOT DEAD YET’s Diane Coleman and Steven Drake, just to mention a few, but each and everyone of us needs to be extremely vocal in defense of our most vulnerable and the exiting laws. We cannot forget that in 1995, a majority of the Senate Committee studying euthanasia favoured a less severe penalty for homicide in which there is a clear element of compassion. I have cited a few contributions from disability advocates which you will be able to easily access when visiting CHN.
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True Story Of The Murder Of A Child - By Dick Sobsey, 14 May 2005 |
Last night Canada's CBC television network aired Society's Child. Although
names were changed, the film, originally released in 2002, takes pains to let
the audience know that it is based on a true story of Katie Lynn Baker who had
Rett syndrome and was starved to death by her mother in 1996.
It's difficult to know why the CBC chose to re-air the film now. Perhaps during
the tense weeks of Terry Schiavo's starvation, CBC execs got the idea to insert
Canada's very on "feeding-tube-and-starvation" melodrama into the line-up.
This film provides the most biased and unapologetic endorsement for killing
children with disabilities of any ever produced.It should not and cannot be
appropriately be compared with the so-called Nazi euthanasia films of the 1930s,
such as Wolfgang Liebeneiner's Ich klage an (I accuse) (1941), which was shown
at the War Crimes Trials after World War II. As Liebeniner points out, his film
was "rejected as evidence because it had 'nothing to do with the crimes
(euthanasia program) on the indictment... The film's purpose was to test whether
public opinion would approve of a law sanctioning death on demand with certain
medical and legal safeguards." (quote from Liebeniner letter, 1965). This film
cannot be compared with Liebeneiner's work because it goes much further openly
endorsing the actions of the mother who killed her child, and suggesting that
she was merely carrying out the clearly communicated wishes of her daughter,
while condemning all those who questioned the right of a mother to kill her
child.
Make no mistake, the killing of Katie Lynn Baker was an important episode in
Canadian History. If Canada goes down the road to euthanasia, the Katie Lynn
Baker case may rightly been considered as an important step in decriminalizing
homicide of children with disabilities. It is important to remember that the
inquest after Katie Lynn Baker's death ruled that she died as a result of
homicide but that the BC crown simply decided not to prosecute because "there is
no likelihood of conviction" (BC Ministry of the Attorney General, 2 December
1999). This was not based on a lack of evidence of the cause of death or who was
responsible, but rather the notion that Canada as a society felt okay about
mothers killing their 10-year-old daughters, under the right circumstances. In
this case the right circumstances mean "when the child has a severe disability."
Of course the made-for-TV drama conveniently leaves out that the death was ruled
a homicide. Not surprisingly, they leave out most of the facts that did not fit
with their unabashed celebration of the killing of a ten- year-old child. In
general, this movie is based on the real case in the same way that a film about
America's victory in Viet Nam is based in reality.
However, if they have left out the facts they have added lots of delusions to
take their place. They take pains to make it clear that this child had a severe
physical disability but no cognitive disability and to show her clearly and
independently communicating her choice to be starved to death. In fact, no one
but her mother claimed that Katie made such a communication. Most experts
claimed she was physically and probably mentally unable to make such an
independent communication and her primary caregiver claimed that that Katie was
communicating and pleading to live, not be killed. Most disturbingly, the film
uses a cheap voice over narration device to tell the story from the perspective
of the child who is killed. This allows the story to be told celebrating killing
as the right thing to do.
This device of putting words in the mouth of the victim to celebrate the
perpetrator is pretty cheap and might be applied to any homicide victim to
provide ringing endorsements of their killers. Perhaps sometime in the future,
the CBC will bring us stories narrated by Andera Yates', Clfford Olson's or Paul
Bernardo's victims celebrating the people who killed them and revealing that
these child killers were really determined and altruistic advocates for
children. I hope not. Of course, the CBC could say they are not really endorsing
this or they could say that the opinions of Dennis Foon, who wrote this, Buffalo
Gal Productions, and Sienna Pictures are not necessarily their opinions just
because they ran the film, but that would not be consistent with their program
description on their website. They characterize the film as "a story of
unconditional love."
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| Chelsea Craig |
On March 19, 2001 Rachel Craig gave her 14 year old daughter, Chelsea, a deadly mixture of drugs, and then drank some of the mixture herself. Chelsea died in the family's home, but her mother survived to face charges of first-degree murder. Chelsea, like Katie Lynn, had Rett syndrome, a condition that only affects girls. Most girls who have Rett syndrome, including Chelsea, do not talk and are not able to walk. A judge ruled that Rachel was not responsible for her daughter's death after psychiatrists said her problems were likely caused by a combination of a family history of mental illness, her own history of abuse and the stress caused by Chelsea's disability. The two psychiatrists made it clear they did not believe that Chelsea's death was a mercy killing like that of Tracy Latimer, "This is not a Latimer case. This is not a mercy killing," stressed Dr. Fugure.
Even though Rachel had a history of attempted suicide, she was allowed a second unsupervised outing. Her body as found at the address she had given to 911 in July 2002.
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| We don't justify killing but we know the desperation |
by Peter and Linda York
It was with great sadness we heard the story about the Quebec mother who
allegedly killed her disabled child and then tried to kill herself ("Montreal
mother on death watch," March 22).
We know most people will not understand her actions and will be quick to condemn
her. But most people will not realize the frustrations, disappointments and
stress that will lead a person to that state of mind.
We are the parents of a disabled 19-year-old daughter. The stress of taking care
of her has taken its toll physically and mentally on both of us. The stress
nearly ended our marriage last year.
We have been writing to cabinet ministers, supervisors, board members and
anybody who will listen in a desperate plea for help. It is sad to admit but we
can no longer take care of our daughter and wish to have her placed in Fort
Frances where we could take her out for afternoons or home for a few days so we
can still be a part of her life.
We expressed our view in a letter on Dec. 4, 2000, that we sent to John Baird,
Ontario minister of community and social services.
"When I read about a parent who felt they were at the end of their rope and has committed suicide or injured their child, I certainly don't justify their actions but I can certainly understand the frustration that drove them to that state of mind. All parties involved must realize when a tragedy like that happens, they are also responsible for what happened. It doesn't matter how they try to justify it in their minds, the end result is somebody who needed help was ignored and they have to realize the blame falls on their shoulders as well as others."
The Association for Community Living's mandate states: "We believe that
a wide range of quality community residential settings and individualized
personal supports, consistent with the principles of community living, must be
readily available and that people have the right to choose where and with whom
they live."
"Residential services and supports should be provided so that people can
live in their own community in self-owned homes or housing operated by
independent, non-profit community-based organizations."
It is the government's position that the association should place and help those
in need. It is an admirable gesture and makes the officials look good on paper.
The problem is that we have been fighting to get help for our daughter and the
only answer we get is "no funding available." We have asked everybody
from the cabinet minister down and in the end we get the same answer.
People may understand our frustrations when we read news articles that Canada's
military may spend as much as $500 million U.S. to help the United States build
a stealth fighter jet. Perhaps if this money was used to help people like us or
the mother in Quebec, her daughter would still be alive and she wouldn't be in
the hospital from an attempted suicide.
So before people judge her and say she should have sought help, maybe she did
seek help and she kept getting the same answers we have been -- no funding.
Peter and Linda York, Fort Frances, Ont. The Ottawa Citizen Friday 23 March 2001
http://www.ottawacitizen.com/letters/010323/5052893.html
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| Montreal woman charged in handicapped daughter's death fit to stand trial |
April 4, 2001
MONTREAL (CP) - A woman charged with murder after her handicapped daughter
consumed what police called a "poison cocktail" has been declared fit
to stand trial. Rachel Capra Craig, 46, underwent a psychiatric evaluation after
being charged with first-degree murder in the death of Chelsea Craig, 14, last
month.
The woman was ordered during a brief court appearance on Wednesday to return to
the Pinel Institute for further psychiatric care.
Craig looked ahead and had no visible emotion as she heard that her next court
appearance will be June 11.
Her husband, Jim Craig, was present in the courtroom but displayed no emotion.
He did not speak to reporters.
No plea has been entered in the case. One of Craig's lawyers, Marc David, said
that is normal procedure on first-degree murder charges and that any plea would
be entered only after a preliminary hearing.
Chelsea Craig had a rare brain disorder called Rett's syndrome, which impedes
the ability to communicate verbally, control body movements or breathe normally.
She was unable to talk or to feed herself.
Police have said she died after consuming a "poison cocktail" at the
family residence in suburban Pointe-Claire. Her mother is also believed to have
taken the concoction. Prosecutor Helene Morin said the delay until June 11 will
allow the Crown enough time to give its evidence to the defence lawyers.
"Mrs. Craig is fit to stand trial, which means she understands the nature
of the accusation against her and she can discuss the matter with her
lawyer," Morin said.
David said earlier Wednesday that Craig has been getting plenty of support from
the public.
"Mrs. Craig wishes to express her gratitude to her husband, to her family
and to her friends as well as to the public for the show of support she is
receiving during this ordeal," he said.
"The expressions of support are by way of letters, faxes, by e-mail. So
it's encouraging for her."
The case has drawn comparisons with the death of Tracy Latimer. Latimer, 12,
suffered from cerebral palsy when she was gassed to death in 1993 as she faced
another painful operation. The girl had been unable to walk, talk or feed
herself.
Her father, Robert Latimer, a farmer from Wilkie, Sask., was convicted of
second-degree murder but maintains he only wanted to stop her suffering. Latimer
will not be eligible for day parole until Dec. 8, 2007.
Updated 5:26 PM ET April 4, 2001http://news.excite.com/news/cp/010404/17/montreal-woman-charged?printstory=1
In
a footnote to the above: Even though Rachel had a history of attempted suicide,
she was allowed a second unsupervised outing. Her body as found at the address
she had given to 911 in July 2002.
| "Giant Steps has a special program for children who suffer from
Rett's Syndrome, a genetic disorder that occurs in one in many thousands of
baby girls. The syndrome, which rarely affects boys, impedes the ability to
communicate verbally, plan and execute body movements and breathe
normally." http://www.montrealgazette.com/news/pages/010321/5040281.html
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| RETT SYNDROME ~ MORE SITE HELPS: Canadian: http://members.home.net/rettsyndromeontario/ | |
| More Links: http://www.rettsyndrome.org/ http://members.tripod.com/~conniecoughlin/livingwrs.html http://www.epilepsy.org.uk/info/rettfrm.html |
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